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Wellesley Theatre Project Holds Spring Soirée in Celebration of Season

WTP Staff Members pose at last year's Teal Tie Affair.

WTP Staff Members pose at last year’s Teal Tie Affair.

 

Wellesley Theatre Project will hold a Spring Soirée For WTP….A Teal Tie Affair on Friday April 27,  2018 at 6:30pm at Wellesley Theatre Project, located at the Wellesley Community Center, 219 Washington St. Wellesley, MA 02481. This fundraising event will provide entertainment and fun for the whole family, including a photo booth and performances by students. Tickets and silent and live auction sales help support this local nonprofit which has an active community service program and provides scholarships, after school programming, performance opportunities and theatre education to area youth.

Tickets for adults are $55 and include food catered by Better Life Food, open bar with wine, beer, and our signature cocktail; students’ tickets are $25. To purchase tickets to the event, please visit here and RSVP by April 23rd.

Wellesley Theatre Project is an arts academy and a Wellesley nonprofit devoted to providing students
(PreK – 12th Grade) with the opportunity to study and experience theatre and performing arts through
year round classes, staged productions, workshops and summer camps.

Registration is open for WTP’s Spring classes and April Break Camps including Acting, Musical
Theatre Workshop, From Page to Stage, Stage Combat With Actors who play Captain America and
Loki in Marvel Universe Live, and more!

In addition, registration is open for WTP’s 2018 Summer Camps. Sessions include three production camps geared for students between 2nd and 12th grade in addition to one week Theatre Arts camps for Pre K- 12th grade. The production camps are: Magic Tree House: Dinosaurs Before Dark (Grades 2-8), Roald Dahl’s James and the Giant Peach (Grades 2-12), and 1776: An American Musical (Grades 9-12).

For more information on WTP’s Spring Soirée or upcoming camps and productions, please visit
www.wellesleytheatreproject.org or call 781-235-1550. All proceeds from this evening will support
Wellesley Theatre Project, a 501(c)(3) tax-exempt organization.

Students pose at the 2016 Teal Tie Affair (From Left to Right: Kate Morrow, Bebe Cloaninger, Payton Defina)

Students pose at the 2016 Teal Tie Affair (From Left to Right: Kate Morrow, Bebe Cloaninger, Payton Defina)

Students pose at the 2016 Teal Tie Affair (From Left to Right: Kay Vandervoort, Cristina Gomez, Lily Harmon)

Students pose at the 2016 Teal Tie Affair (From Left to Right: Kay Vandervoort, Cristina Gomez, Lily Harmon)

Taking the Plunge: Friends From the WHS Class of ’99 Pull Together to Fight Devastating Disease

You probably follow some of them on Facebook and perhaps see them in person at a reunion but, by the time you’re in your 30s, your high school buddies are usually not around enough to share the everyday joys, disappointments, and milestones of your life. So how to explain the ongoing connection of 11 women in the Wellesley High School Class of 1999?

Some of it has to do with a little girl called Elodie.

Elodie was born on July 15, 2016, to Dave and Emily (St. Thomas) Kubik, who live in Connecticut and work in New York City. The middle child of five, Emily grew up on Norwich Road in Wellesley, where her parents and a sister still live.

The couple married in 2013. Before they started a family, Emily said, “I had every single genetic test you could run.” But nothing showed up.

Yet at birth at Greenwich Hospital, Elodie was bleeding a little from the mouth, and had a very small cut on her leg. When she was washed off, some of her skin came off too. That was enough to raise the suspicions of the medical personnel at Greenwich Hospital and Elodie was quickly taken on a 45-minute ambulance ride to the neonatal intensive care unit at Yale. “Within 10 days we had genetic confirmation,” said Emily.

It turned out Elodie had a very rare disease called Recessive Dystrophic Epidermolysis Bullosa. EB is actually a name for a group of painful, disfiguring diseases for which there are no approved treatment. Life expectancy is 30 years old. “That’s why we feel a tremendous amount of urgency,” said Emily. “It’s a race against the clock.”

The Wellesley village steps in

Kristan Fletcher Khtikian, who grew up across the street from Emily and was in the same high school class, describes her friend as ” fiercely determined, and alongside her husband Dave, works tirelessly on behalf of EB families to raise money and awareness for the cause.”

But she is aware that it takes a lot to have a major impact on a rare disorder. “And that is why myself and Kate Boardman Hall, another Wellesley native, have joined together and corralled our close-knit group of Wellesley childhood friends (all of us WHS class of ’99 grads, and the majority of us whose parents still live in Wellesley) to raise critical funds that will accelerate progress towards finding new therapies for EB,” she said. Clinical trials are currently under way.

On March 3, the whole group, plus anyone else who signs up at https://www.plungeforelodie.org, will be plunging into the chilly waters off the Hingham Bathing Beach to raise funds for the EB Research Partnership, a nonprofit dedicated to funding EB research. The Hingham event will be the first Boston-area EB fundraiser.

The group will also be together on the weekend of Jan. 20. “It’s a remarkable group of women I happened to find,” said Emily.

Elodie

Emily says that while Elodie is initially shy when she meets new people, she is a happy child who “gives back of lot of joy,” despite what she must endure.

She is, of course, too young to know anything about EB. “She’s aware that she had to go through annoying bandage changes twice a day,” says Emily. The bandages are much more medically sophisticated than Band-Aids, which would pull Elodie’s very fragile skin off.

But her parents, and the remarkable nanny who cares for her when they are at work, already know what faces them all. They see the wounds and blisters on the toddler’s skin, and suffer along with her. She doesn’t yet understand that she can’t itch herself, so her parents greet each morning with fear, wondering what she might have done to herself during the night.

They must be very careful of what she eats, because she will likely have issues with her esophagus. “It’s a disease that affects everything,” Emily says.

Although the disease is genetic, there had been no outward signs of it in either family. Now every single person in her family is being tested.

That’s knowledge for the future. For now, Emily worries every day what it will be like for Elodie as she gets older and becomes aware that she’s different.

“I hope she finds a group of friends like I had in Wellesley that can help support her.”

Join Sustainable Wellesley for Dinner and a Movie!

SW-Logo-presents

DocumentaryCollage

Movie nights will take place in the Wakelin Room at the Wellesley Free Library and are free and open to the public, with dinner served!

Registration Required.

Doors open at 6:15 p.m. and screenings start at 6:45 p.m.

Following each film will be a brief Q&A and discussion ending at 9 p.m.

Monday, February 12th, Triple Divide: “The best documentary on fracking” (Dinner: Chipotle)

Wednesday, March 14th, PlanEat: Nothing changes the planet as much as the way we eat (Dinner: Cocobeet)

Wednesday, April 11th: A Plastic Ocean: We need a wave of change. (Dinner: Sweet Green)